Ingunn giving speechADVOCACY

OIFE at Nordic Rare Disease Summit

In April 2023, for the second time, the Nordic Rare Disease Summit brought together decision makers, healthcare professionals, patient organizations, media, academia and life science companies to elevate rare diseases as a priority area in the Nordic countries. The Summit is a platform for policy discussions and the exchange of good ideas.
OIFE’s president Ingunn was invited to talk at the Nordic Rare Disease Summit, which was attended by more than 600 participants – 50% live and 50% virtually. Ingunn attended online and took part as a panelist in the session called Access to innovation – about how people with rare conditions in Europe can have quicker access to new and innovative therapies. There were also other familiar faces to be seen from the OI- and Rare Disease-community.
Watch the recordings of breakout-sessions here.
Photo from one of the panel debates at the Nordic Summit.
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