Heavy snowfall didn’t stop osteogenesis imperfecta from being well represented at an educational seminar on challenges and possibilities in advanced therapies. The event was hosted on 13 March 2023 by Oslo University Hospital in Norway.

Rebecca Tvedt Skarberg was on the organizing committee, Inger-Margrethe Stavdal Paulsen from Norsk Forening for Osteogenesis Imperfecta (NFOI) gave a talk about the importance of patient involvement throughout the process and Ingunn Westerheim from OIFE was among the many interested participants.

Advanced therapy refers to new medical products that use gene therapy, cell therapy, and tissue engineering. Advanced Therapy Medicinal Products (ATMPs) have the potential to revolutionise the way diseases are treated. You can read more about them on the European Medicines Agency website

OIFE is providing advice from the patient perspective in many different clinical trials. Some of them involved ATMPs.