On February 8th a European Parliament event took place, hosted by Member of Parliament (MEP) Frédérique Ries and organised in collaboration with EURORDIS.

The event was in the framework of Brussels Rare Disease Week 2023, to reflect on how the EU can ensure that more and better treatments are available, accessible and affordable for people living with rare diseases. Rebecca Tvedt Skarberg gave a talk (on videolink) on behalf of people with OI and other rare conditions. You can see her talk through this link.