OIFE is a member of the European Rare Bone Forum (ERBF). A while ago they initiated a project to try to get a better overview of the unmet needs in rare bone conditions – especially regarding research & development:


OIFE promised to support the ERBF project a long time ago – but unfortunately some of the emails from ERBF about the survey ended up in our spam filter. We have therefore not been able to spread information about the survey to our member organizations until now.

The ERBF has decided to postpone the survey deadline to February 10. As you can see below the survey is available in FIVE different languages.
Help the OIFE helping the ERBF filling the knowledge gaps!


Thank you in advance!