On January 24th OIFE hosted its 2nd European Leadership meeting to inform our member organizations about news. More than 25 representatives from most of our European member organizations attended. 

Topics included among others:

  • Information about future events
  • Status on the restructuring of OIFE and moving to Belgium (OIFE 2.0.)
  • Status on the IMPACT survey
  • News from current research and clinical trials in OI
  • The Pain & OI project
  • EU advocacy
  • Future events where OIFE is planning to attend or contribute
  • EURORDIS Open Academy
  • Facebook Fundraisers
  • New members in ERN BOND
  • Our upcoming campaigns for Rare Disease Day and Wishbone Day