On January 25th 2022 we organized the kick-off of the Pain & OI project, which is a collaboration between the OIFE and the Osteogenesis Imperfecta Foundation (USA) and a group of dedicated professionals who have experience on pain management, pain research and/or pain & OI. We had 21 participants from 10 different countries at the workshop.

We agreed on the common goals:

1. Recommendations on how to measure pain in OI
2. Educational activities – OI & pain (incl. different types)
3. Recommendations on management of chronic pain for children and adults with pain

We are lucky to have such dedicated clinicians & researchers helping us from 3 different corners of the world (Europe, US/Canada and Australia).