OIFE at Council of Federations meeting
Today OIFE was represented at the Council of Federations (CEF) meeting of EURORDIS – the European umbrella organization for rare conditions. The socalled CEF is a forum where umbrella organizations and federations for rare conditions in Europe come together to learn about news in the European rare disease field and to provide input to EURORDIS in important policy questions.
One of the main topics today was the ongoing revision of the pharmaceutical legislation in the European Union, which has been up for public consultation. How can we make sure that treatments for rare conditions are being developed and that they eventually become accessible for patients in all European countries?