Professor Kara Ayers from the US have three children of her own. Now she’s working together with the researcher Leanne Baird, who’s a genetic counseling student, to find out more about the role OI plays when young people are making future decision about having children.

Kara and her student need young adults with OI aged 18-25 to fill out a questionnaire that assesses understanding of OI and the role OI understanding plays in future decisions to have children. The questionnaire is in English and will take 10-20 minutes to complete. People from all countries can take part.

The information gathered in this study will help the OI-organizations understand how to better communicate inheritance information to young adults with OI, which will hopefully allow for more informed reproduction decisions.

If you are interested in participating, please use this link.

No identifying information will be collected. Findings may be published but will not include any identifying information.

If you have any questions about this research study, please contact the researchers Leanne Baird at Leanne.baird@cchmc.org