A new quality registry for rare bone conditions is being developed in Norway. It’s a collaboration between Oslo University Hospital (orthopedic dept.) and the Norwegian centre of expertise for bone conditions TRS kompetansesenter for sjeldne diagnoser.

On May 7th an advisory board was established and Ingunn Westerheim & Rebecca Tvedt Skarberg (substitute) from OIFE were invited as board members to represent the European perspective and the connection to the European Reference Network on Rare Bone Diseases (ERN BOND) and EuRR-Bone.

Read more about the registry (in Norwegian) on the webpages of Oslo University Hospital.

Screenshot norwegian registry