Guide for parents after diagnosis
Your newborn child is finally here, but when you discover that all is not as it should be, what do you do? – When your child is diagnosed with a rare condition, there are so many things that go through your head.
OIFE recommends the publication “Guide for parents after diagnosis” to parents after they have received a
diagnosis about their child’s illness. This brochure is disease independent and specifically describes the psychological aspects of having a child with a medical condition. It has been developed by a worldwide non-profit patient organization based in the Netherlands called CMTC-OVM.
Your child’s condition affects not only your child but the whole family. But thankfully, there is plenty that you can do to help you and your child: There are a whole arsenal of therapies and organisations available to you out there. You don’t have to be alone!
The brochure is available in five languages and can be downloaded here:
![[Image shows a gouache/ink/pencil cartoon illustration I made in my sketchbook. Against a black background, a yellow orb frames an illustration of me sitting on the floor, crooked white femme with glasses and hair in a messy bun. I look down lovingly at the ghost of kid-me sitting in my lap, and hold the back of her head gently. She looks back at me and holds juniper (fluffy black cat) in her lap. Around the orb is abstract decorative designs of yellow vines, sparkles, and dots.]](https://oife.org/wp-content/uploads/2021/11/Haley-Brown-illustration-300x236.png)
