One or two times a year, members of OIFE’s Executive Committee attend the Council of European Rare Disease Federations (CEF) in EURORDIS. On November 26th and 27th Ingunn and Bruno attended the Zoom-meeting, where more than 90 people from all over Europe took part.

Topics included Rare Disease Week 2021, ERNs, Access to therapies, EU policy work, newborn screening and a lot more. The meeting gave us valuable insights and ideas that will help us in our future OIFE work.