OIFE co-hosts at ICCBH Virtual Forum

The International Children’s Bone Health Conference (ICCBH) is hosting a virtual forum from November 18-20 and we encourage professionals and patient representatives to attend.

Target group

The meeting programme of ICCBH Virtual Forum is designed for healthcare professionals and researchers.  Pharma industry regulations do not allow open invitations to members of the public to attend. However, patient organisation representatives are encouraged to register to attend the meeting provided they meet the following criteria:

  • They represent a formally registered international organisation with elections (or national with some international activities) and
  • They are a member of the management group or are officially nominated by the management group or are a paid member of staff.

OIFE co-hosting Workshop on Patient Involvement

On November 18th, OIFE & OIF will together moderate a workshop on patient involvement in research.

Workshop Nov 18th 17.30 – 18.30 CET: Patient involvement in research

Moderators: Tracy Hart (OIF)/Ingunn Westerheim (OIFE)

Short guide to patient partnerships in rare disease research projects
Virginie Bros-Facer (Paris, France)

What I learned from involving patients in my research
Lars Folkestad (Odense, Denmark)

Patient involvement – A box to tick off or making a real difference?
Ingunn Westerheim (Oslo, Norway)

See full programme here: https://iccbhonline2020.org/


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