Some people felt that the project Key4OI were missing some important aspects of adult health in OI, when the first set of outcome measures in OI was developed. Now the project wants to develop an additional, supplementary set of outcome measures for 4 new areas.

 

Ears, teeth, lungs and heart

Key4OI wants to develop an additional, supplementary set of outcome measures for the following 4 areas:
  • Hearing
  • Teeth & Jaw
  • Pulmonary function
  • Cardiovascular function

 

Experience, knowledge or interest?

Do you have experience with, knowledge about or an interest in one of these topics? Please consider sharing your experiences by getting engaged in virtual focus groups or workshops! Let us know by commenting on this post or by sending an email to office@oife.org before September 14th. 

 

Quarterly update on Key4OI

Every 3rd month Care4BrittleBones hosts a webinar to update the OI-community on the project Key4OI. Anyone can join! Please join the webinar on Zoom today at 16.00 CET (10.00 EST) if you are interested. The purpose of the webinar is to keep everyone up to date with Key4OI and all work around Key4OI (eg Key4OI Plus, registries based on Key4OI, outcome measures etc) incl. opportunities for Q&As.
  • Key4OI implementation update
  • Key4OI – next steps incl. introduction to EuRRBone
  • Key4 OI Plus
  • Next steps
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