RARE 2030 Scenarios
The Rare2030 – Foresight in Rare Disease Policy is a foresight study that gathers the input of a large group of patients, practitioners and key opinion leaders to propose policy recommendations that will lead us to improved policy and a better future for people living with a rare disease in Europe.
Rare2030 is a two year project that will end in a presentation to the EU parliament at the end of 2020 with recommendations on the most critical areas needing sound policy.
Rebecca T. Skarberg from OIFE and ERN BOND has been part of the expert panel of Rare2030 and gave several talks about the topic at the ECRD-conference which took place online on May 14th and 15th. It’s still possible to buy ticket to the conference, where you can see all the sessions and download the posters for 365 days after the conference.
With the information collected and trends identified the Panel of Experts has put together four possible future scenarios depicting what the world may be like for people living with a rare disease in 2030. These policy scenarios have been illustrated in this new video. We recommend you all to check it out!