ADVOCACY

OIFE AT EURORDIS AGM

On May 13th OIFE president Ingunn represented OIFE at the Annual General Meeting of EURORDIS – European Rare Diseases Organisation on Zoom, which was scheduled to take place in Stockholm followed by the ECRD-conference. We approved reports and voted for future plans, which includes many important initiatives, that will affect the lives and situations of people with rare diseases.

More than 240 people joined the first-ever virtual General Assembly of EURORDIS. A new Board was elected and we congratulate Alba Ancochea, Dorica Dan and Birthe Holm, who were all re-elected to the Board of EURORDIS. In addition two new members were elected to the Board of Directors: Alain Cornet, of Lupus Belgium & Maria Montefusco, Rare Diseases Sweden.

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