Each year all delegates are invited to the Annual General Meeting (AGM). Anyone from our member organizations can attend the AGM. In addition OIFE volunteers, volunteers from other organizations, professionals and other people with an interest in OIFE can be invited. At the AGM the EC accounts for OIFE’s activities in the past year, future plans and policies are discussed and members exchange news and ideas.

AGM ON ZOOM

This year our AGM will be different. Our meeting that was planned to take place in Valencia, will take place on the video platform Zoom in two different parts:

OIFE AGM PART 1 (BUSINESS PART)
Time: Saturday 9th of May from 09.45 – 12.15 CET

Agenda includes:

  • Approval of annual reports & budget for 2021
  • Elections
  • News from OIFE
  • Planned survey on burden of disease in OI
Click here to download the agenda.

OIFE AGM part 2 – NEW TREATMENTS IN OI
Time: Saturday 9th of May from 14.45 – 17.00 CET

Includes talks about:
– News on BOOSTB4 (Cecilia Götherström)
– News on setrusumab (Mereo Biopharma)
– Access to treatments for rare bone diseases (Oliver Gardiner & Paul Connor)
– Registries & patient data (Lena Lande Wekre)
Click here to download the agenda.

REGISTRATION

Please register to attend before April 30th through this link: https://forms.gle/2HUPpeLHabWhmFRZ6

WHO CAN ATTEND? 

All members of OIFE’s member organizations who are interested can attend both part 1 and 2.
You don’t have to be an OIFE delegate, but only official delegates can vote.