Rare 2030 is seeking young rare disease patient advocates to contribute to the future of rare disease policy. If you are 18-30 years old and living with a rare disase yourself, a sibling or a student in a related field you can get involved.

Motivated by the rare disease cause? Interested in advocacy?

Rare2030 project is seeking to recruit young people to contribute to the future of rare diseases policy.

If you are between 18-30 years old and are a student in a related field (medicine, health policy, public health, health economics, human rights), a sibling of someone affected by a rare disease or patient advocate yourself, we invite you to apply to take part in the debate on the rare disease policy future.

Alternatively, if you know someone who could be interested, feel free to share the information with your colleagues and contacts.

Concept paper can be found here

Deadline for applications: 1 March 2020

For more info about the Rare2030 project visit our webpage: https://www.rare2030.eu/

Please contact rare2030@eurordis.org for any questions.

Be part of the new generation of rare diseases policy makers!