In 2021 Jon-Kristian (12) will be one of the faces of Rare Disease Day – an annual international awareness day celebrated on the last day of February. Get to know all the faces of #RareDiseaseDay 2021 on this webpage.

Jon-Kristian lives in Bergen, Norway. He loves doing e-sport and playing board games with his family. Once a week he makes dinner for the family, together with his assistant.

We’re happy to have you as our OI-ambassador Jon-Kristian! Below you can find an interview that OIFE did with Jon-Kristian in February 2021.