CONFERENCES

Join Quality of Life 4 OI!

Join the conference Quality of Life 4 OI, taking place from 22-25 November 2019 in Amsterdam!
The Conference organized by Foundation Care4BrittleBones together with OIFE, OIF, ERN-BOND and BBDC will provide a platform to engage on clinical practice and research aimed at increasing quality of life for people with OI. The conference discusses topics like surgery and rehabilitation, medical treatment options including stem cell treatment and gene therapy, diagnosis and psychosocial aspects like fatigue, pain and mental health. The conference takes a multidisciplinary approach and is focused on children as well as adults with OI. Key questions are: How do we measure outcomes in people with OI and what should the standard of good clinical care be in these areas?

This conference is for you, if you are:

  • a health care provider or allied health care professional (Genetics, Internists, Pediatricians, Endocrinologists, Rheumatologists, Radiologists, Nephrologists, Orthopedic Surgeons, Nurses / Physician Assistants, Physiotherapists, Occupational therapists, Psychologists, Dentists…)
    a person with OI or closely related to someone with OI. We will do our very best to ensure we can accommodate the needs of every person with OI. Please be in touch to learn about accessible rooms and daily living support. A helpdesk has been established just for you (OI@qualityoflife4oi.org)! Don’t hesitate to ask!
  • an industry representative interested in OI (pharmaceutical or other industry)
  • an other representative, eg from EMA (European Medicines Agency), ERN-BOND, BBDC etc.

For more information and registration, go to www.qualityoflife4oi.org.

Contact: dagmar.mekking@care4brittlebones.org