OIFE is a member of the rare disease umbrella organization EURORDIS. At least four of OIFE’s patient representatives have graduated from EURORDIS Summer School, but we are always interested in recruiting more patient experts.

Through the Open Academy capacity-building programmes, EURORDIS empowers patient advocates to have the confidence and knowledge needed to bring their expertise to discussions on health care, research and medicines development with policy makers, industry and scientists. Apply now to attend the EURORDIS Winter School on Scientific Innovation & Translational Research 2020 or join the Open Academy online to participate in free e-learning!

Read more about what the EURORDIS Open Academy can offer here.