One of OIFE’s goals is to represent our members on an international level and be the voice of people with OI and their families.

One of our representatives is Rebecca T. Skarberg. She is the voice of people with OI in the European Reference Network for Rare Bone Disorders (ERN-BOND), who had their annual technical meeting in Brussels this week. You can read more about ERN-BOND at their newly launched webpage: https://ernbond.eu