In 2019 Care4BrittleBones would like to build up a network to foster knowledge exchange around psychosocial aspects of OI. The network will be led by Dr. Kara Ayers (photo) from Cincinnati children’s hospital, USA and Dr. Claire Hill from Sheffield’s children hospital, UK. The purpose of the network is to explore key topics of shared interest, foster scientific research and best practice exchange in this area with the overall aim to improve quality of life for people with OI.

If you are a professional working with people with OI (children or adults) in relation to psychosocial topics and interested to share your experience and learn from others, please sign up to the community to be kept informed about their upcoming meetings and any educational activities. This professional network is open to people from all disciplines including allied health professionals. Sign up here: https://bit.ly/2RsatYs

Questions? Please contact dagmar.mekking@care4brittlebones.org