The Spanish research foundation Fundación Ahuce has launched a new research project in collaboration with the University of Valencia. The OIFE encourages as many people with OI as possible to take part – even if chronic pain is an issue for you or not. People from all countries can participate as long as they can read and understand English or Spanish.

What is the purpose of the study?

The project aims to assess the presence of chronic pain in adults affected by osteogenesis imperfecta, as well as its relationship with sociodemographic, clinical and psychological variables.

Who can participate in the study?

People with osteogenesis imperfecta from all countries, older than 18 years, with or without chronic pain.

The survey is available in the following languages:

For more information about the study in Spanish – please visit the webpage of Fundación Ahuce.