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Spanish
35
Member organizations
24
OIFE passport languages
8549
People with OI represented
50667
People with OI in the world
About us
The Osteogenesis Imperfecta Federation Europe (OIFE) is an umbrella association for organizations dealing with with the rare disease Osteogenesis Imperfecta (OI) also known as brittle bone disease. The non-profit organization was established in 1993 by six founding OI-organizations and is registered as a charity in the Netherlands.
Can you help us create good registries?
Why do we need registries for OI? Several new drugs are being investigated for OI…
OIFE input for EU research
What do you think are the most pressing challenges that EU funded research and innovation…
OIFE at China-Dolls Conference
From August 3rd - 6th 2019 the Chinese OI society (China-Dolls) celebrated their 10th anniversary…