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Spanish
34
Member organizations
24
OIFE passport languages
8549
People with OI represented
50667
People with OI in the world
About us
The Osteogenesis Imperfecta Federation Europe (OIFE) is an umbrella association for organizations dealing with with the rare disease Osteogenesis Imperfecta (OI) also known as brittle bone disease. The non-profit organization was established in 1993 by six founding OI-organizations and is registered as a charity in the Netherlands.
Discrimination in Critical Care Guidelines
The rare disease community raises alert over discrimination in #CriticalCare guidelines during COVID-19 pandemic. Read the…
COVID-19 – info for people with OI
The OIFE will update this page with links to resources about COVID-19 and osteogenesis imperfecta.…
Virus Workout every Sunday
Are you stuck in your home because of COVID-19? Are you bored? Can't go to…