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Spanish
35
Member organizations
24
OIFE passport languages
8549
People with OI represented
50667
People with OI in the world
About us
The Osteogenesis Imperfecta Federation Europe (OIFE) is an umbrella association for organizations dealing with with the rare disease Osteogenesis Imperfecta (OI) also known as brittle bone disease. The non-profit organization was established in 1993 by six founding OI-organizations and is registered as a charity in the Netherlands.
OIFE in Barcelona
Today OIFE is represented by vice-president Dace Liepina at the 28th EURORDIS Round Table of…
The Voice of People with OI
Do you want help us establish the voice of people with OI? OI Community Sounding…
Registries in Rome
OIFE's honorary member Taco van Welzenis recently attended the International Summer School on Rare Disease…