34
Member organizations
24
OIFE passport languages
8549
People with OI represented
50667
People with OI in the world
About us
The Osteogenesis Imperfecta Federation Europe (OIFE) is an umbrella association for organizations dealing with with the rare disease Osteogenesis Imperfecta (OI) also known as brittle bone disease. The non-profit organization was established in 1993 by six founding OI-organizations and is registered as a charity in the Netherlands.
OIF CONFERENCE ONLINE
In place of the in-person OIF National Conference this year, the Osteogenesis Imperfecta Foundation in…
New OI song
Check out the new OI-song «Count on Me» performed by 21 singers from the OI-community…
OIFE AT PATIENT ENGAGEMENT FORUM
This week representatives from OIFE attended two different online sessions connected to the Patient Engagement…