35
Member organizations
24
OIFE passport languages
8549
People with OI represented
50667
People with OI in the world
About us
The Osteogenesis Imperfecta Federation Europe (OIFE) is an umbrella association for organizations dealing with with the rare disease Osteogenesis Imperfecta (OI) also known as brittle bone disease. The non-profit organization was established in 1993 by six founding OI-organizations and is registered as a charity in the Netherlands.
New Rare Bone Network
Yesterday OIFE was happy to co-host the establishing meeting of a multistakeholder rare bone network…
OIFE EXECUTIVE COMMITTEE
Ingunn Westerheim and Ida Männistö have been re-elected respectively as President and 2nd Vice…
Webinar on registries
Registries was one of the main topics at OIFE AGM. Mr. George Reynolds (photo) gave…