34
Member organizations
24
OIFE passport languages
8549
People with OI represented
50667
People with OI in the world
About us
The Osteogenesis Imperfecta Federation Europe (OIFE) is an umbrella association for organizations dealing with with the rare disease Osteogenesis Imperfecta (OI) also known as brittle bone disease. The non-profit organization was established in 1993 by six founding OI-organizations and is registered as a charity in the Netherlands.
OIFE at ECRD-conference
The European Conference on Rare Diseases (ECRD) was originally planned to take place in Stockholm…
Bruno new 2nd Vice President
At the OIFE AGM 2020, which took place on Zoom on May 9th, we welcomed…
Safe & active in the OI community!
The last couple of months have been anything but easy. For all of us, this…